“You Don’t Know What You Don’t Know”: Our Partnership with Club 21

Logo for Club 21 in red with blue and green people illustrations to the left.Center for Independent Futures partners with agencies that strive to create a society enriched by the inclusion of individuals with disabilities. Club 21 Learning and Resource Center, located in Pasadena, California, is an educational learning center that provides tools and resources that enable individuals with Down Syndrome to be fully included. As her daughter approached the end of her high school career, Club 21 Executive Director Nancy Litteken was desperately searching for person-centered tools to support Molly’s independence.

Discovering My Full Life™

It wasn’t until well into the early hours of the morning when Nancy discovered our work through an exhaustive internet search. She spent time reading through the Center for Independent Futures website, including our My Full Life online application. An entirely person-centered approach, Nancy wondered if My Full Life might be exactly the tool she was looking for.

Nancy discovered our comprehensive person-centered tools and became excited. “I was blown away,” Nancy recalls. “Their process is hopeful. I think having tools that equip families, educators, and agencies gives freedom, hope, and choice. It helps you dream.”

Making Dreams Into Reality

Adam poses with friends he has made through Center for Independent FuturesTo turn hopes and dreams into reality, our My Full Life process provides structured tools such as the Skills Inventory to help families develop a roadmap to independence. “You don’t know what you don’t know,” reflects Nancy. This realization led Nancy to go a step further with My Full Life by seeking our Skills Inventory certification.

Two members of our staff, Cynthia Witherspoon and Chrissy Dale, have gotten to know Nancy and Club 21 very well. Cynthia has visited their offices several times throughout training Club 21’s three Skills Inventory Consultants. Each of these consultants is now certified to use our approach in working with families. By completing the Skills Inventory, Nancy says, “you realize what you don’t know, and then the tool helps you discover what you need to do about it. It’s pretty phenomenal.”

Our online application also allows greater freedom for agencies to tailor our tools to their specific population. Nancy explains, “I love that we can upload pictures to My Full Life. Our participants with Down Syndrome are very visual learners, and we can keep adding visuals and adapting the curriculum.” My Full Life Director Chrissy Dale says, “When we developed My Full Life into a learning management system using technology, we realized the potential to impact lives has no limit.”

As the demand for person-centered tools increases locally and nationally, we are ready to work with organizations like Club 21. Nancy observes, “I think we are reimagining what life with a disability looks like. I think it’s the job of Center for Independent Futures and Club 21 to redefine disability from the start.”

Get In Touch!

Learn more about My Full Life and how your agency can get started with person-centered approaches today! Fill out the form for more information on our School & Agency page to hear from a consultant soon.

A Guide to Person-Centered Planning

At Center for Independent Futures, our Life Skills Tutors commit to providing person-centered planning and life skills development. From day one, we have understood the power of asking an individual, “What are your hopes and dreams?” We are proud to have been one of the first agencies in Illinois to put the individual at the heart of our services. As more agencies ask themselves how to implement person-centered services, we want to share our experiences with you.

What is Person-Centered Planning?

Current residents smile outside their Community Living Option.Historically, people with disabilities were institutionalized and excluded from society. However, over time American society has come to realize that institutions are not the answer. Moving away from institutions, states have largely chosen their own standards of care and have created new policies at varying rates.

Person-centered planning is one of these policies that states are implementing at different speeds. At the core of this policy lies an individual’s vision for their own future. The goal of person-centered planning is to support an individual with disabilities in creating the future of their dreams. A tutor or team then decides on necessary supports based on individual goals.

These personalized support plans are never cookie-cutter designs. They are based on individual dreams, and then enacted using individualized support options. Because person-centered care is radically different from traditional supports for people with disability, sometimes agencies struggle with this change and wonder: how can we implement these ideas?

How Does Person-Centered Work?

In our office, we think of person-centered care as continued evaluation of a person’s hopes and dreams – and the action steps necessary to achieve their goals. With our participants, we begin by meeting with the individual’s support group, made up of family, friends, and community members.

We begin by asking about hopes and dreams, and then we identify obstacles and assets. This information helps to define goals and create action plans. Throughout this process, we listen, look, and learn to understand how we can best help someone create and reach goals.

Supplemented by our skills inventory and curriculum, individuals work with tutors to identify what life skills can help attain goals. Each part of person-centered care requires reflection and revision from time to time. As skills develop or dreams change, these plans have to be flexible enough to allow for new ideas.

Want to Learn More?

My Full Life application on iPad

In the last 5 years, Illinois mandated that by 2022 all agencies must use person-centered planning to work with their participants and clients. For agencies and educators, we offer our My Full Life™ online application. My Full Life includes an in-depth skills inventory, plus the most comprehensive skills curriculum available.

If you are interested in learning more, please visit our Schools & Agencies page and request more information through our My Full Life form. We can’t wait to help you on the journey to providing person-centered care.

Join Dream Team on Lake Shore Drive

Join Center for Independent Futures for a biking experience like no other at MB Bike the Drive. On Sunday, May 26, 2019, Chicago’s iconic Lake Shore Drive will be closed to cars, leaving an open expanse of road available to bikers. Watch the sun rise over Lake Michigan and take in stunning views of the city skyline as you soar down the open road.

When you ride with Center for Independent Futures’ Dream Team, you’ll be part of a team of individuals with and without disabilities, including participants, staff, board members, and friends. Our team members participate in this incredible event and raise funds for our programs and services in honor of their ride. Center for Independent Futures makes it easy to participate by supporting riders to sign up for the event, helping with fundraising, and taking care of transportation logistics on the day of the event.

How to Join the Dream Team

We offer incentives for different levels of fundraising, like a refund of your Bike the Drive registration fee and tickets to our annual events. All funds raised by our dedicated riders will support

Center for Independent Futures’ vision of a future where individuals with disabilities have access to all opportunities of a full life.

To learn more about Bike the Drive and to join the Dream Team, contact Jeff Morthorst at (847) 328-2044.

New at SPARK: Golden Tickets & Live Auction Prizes

Every year before SPARK, we are so excited to announce the fabulous live auction packages available to our guests for bidding. Today, we are announcing the five prizes attendees will be able to bid on, plus a thrilling new way to experience SPARK!

Introducing the Golden Ticket

For the first time, we will be offering Golden Tickets to our community! Golden Tickets are a new way to participate in our favorite night of the year. There will only be 150 Golden Tickets sold, so you know what your chances of winning are! If you purchase a Golden Ticket, please make sure that you have selected your prize at the time of purchase. Winners need not be present to win. Each Golden Ticket is $100, and the prize is something special!

The winner of our Golden Ticket drawing will get to choose from the live auction prizes before any bidding even starts! If you win the raffle, you will receive the prize you choose at time of purchase, and that prize will be removed from the live auction. Are you ready to find out your options?

SPARK 2019 Live Auction Packages

From golfers to travelers to art lovers, we have a winning package for anyone’s interests. Don’t miss out on your chance to secure the package you know you want – get your Golden Ticket today! And if you don’t win, there’s still a chance to win your item in the live auction. Check out the live auction prizes today.

Golfing With A Pro

You and a friend will join Hans Larson, PGA head professional, at Westmoreland Country Club, accompanied by member Jim McClure. Your day on the course will include 18 holes of golf, caddies, tips & playing lessons from Hans, and lunch. Date to be mutually agreed upon among all parties.

Magnificent Views in Costa Rica

Enjoy a weeklong vacation at Villa Vista Magnifica in Costa Rica, overlooking the Pacific Ocean and gorgeous beaches Playa Prieta and Playa Penca. Villa Vista Magnifica is a 5 bedroom, 5.5 bath villa staffed with 2 full-time employees. You and 9 of your friends can relax in luxury with such features as an outdoor shower, a private patio, an infinity edge pool, and an upstairs terrace view. Airfare not included; average airfare to Costa Rica is $450 per person. High season is from May through July.

Dinner With Easter Seals Vice President
Please join our Executive Director Ann Sickon & 8 other guests for a four-course gourmet dinner with fine wines in a newly renovated 1882 row house in Little Italy on a Friday or Saturday night this summer. Our hosts Tom LeClair and Carlyn Berghoff will prepare an amazing evening that also includes lively conversation on trending topics in the world of disabilities.
Take Me Out to the Ball Game

Four seats to your choice of two 2019 games decided upon in conjunction with the donor. These seats offer an extraordinary opportunity to experience Wrigleyville’s favorite team from premium seats only 10 rows behind home plate.

Rob Larson’s Water Lilies

Inspired by Claude Monet’s use of color and expressive brushstrokes, our own Rob Larson has created his own rendition of Water Lilies. Using oil on canvas, the painting celebrates the beautiful relationships found in nature through reflections in the pond and the flowering water lilies.

What Are You Waiting For?

Group enjoying games at Evanston fundraising event, SPARKTickets are on sale now! Early bird prices are available until March 31st, and then all ticket prices will increase by $25. While you’re getting tickets to SPARK, you can also purchase your Golden Ticket and Heads or Tails glamour glasses. Don’t forget to indicate which prize you’d like if you bought a Golden Ticket, and let us know your dinner choices too!

We can’t wait to see you at SPARK and start igniting dreams together!

How to Teach Self-Determination Life Skills

As Americans rethink the ways we manage education, concepts like self-determination are making way for individualized instruction. Many teachers are beginning to ask themselves, “How can I teach self-determination to my students – especially students with disabilities?”

This question is crucial for all students, but for students with disabilities, navigating the world with critical self-determination life skills makes a whole world of difference. In fact, according to a University of Illinois article, students with disabilities in self-directed learning programs are more likely to achieve academic and non-academic goals! Find out how you can incorporate these concepts into your curriculum.

What Are Self-Determination Life Skills?

Student playing with puzzle pieces in colorful classroom settingSelf-determination skills are developed through a combination of skills, knowledge, and beliefs. Those pieces of self-determination help people engage in goal-directed, self-regulated, autonomous activity. Learning how to act in a self-directed manner empowers every student who gains these skills.

There are many components of self-determination that facilitate self-directed goals for students. Teachers might use curriculum that focuses on decision making, problem-solving, goal setting, self-awareness, and self-advocacy, among others. We can all imagine that dedicating time to skills like these benefit personal development, but how can teachers implement these concepts into their classrooms?

Approaches to Teaching Self-Determination Life Skills

While soft skills are difficult to measure, teachers should be able to fit these skills into existing curriculum with just a little extra effort. Some ideas to include this type of life skill involve:

    • Invest time in facilitating student-driven IEPs and transition planning, and check in with students to make sure they are prepared for meetings. All students are capable of being involved in planning their life.
    • Teach skills and enhancing knowledge of skills like problem-solving and decision making directly, creating lesson plans around these types of skills.
    • Embed instruction into general curriculum. For example, in any lesson plan, a teacher can begin by asking students to create a goal. In the next step, students will take action toward their goal. By the end of the lesson, students can reflect and revise their goal, learning about self-awareness.
    • Dedicate time to person-centered planning, an approach to plan and develop supports to help a student or any person achieve their goals.

Teaching Self-Determination Through Adulthood

These tips are great for teachers who can shape the future for students with disabilities, but what about adults who have already transitioned out of school programs?

Our My Full Life™ online application includes planning, skills inventory, and life skills curriculum designed to support individuals with disabilities living independently in the community. For educators and agency professionals interested in learning more, please visit this page and contact us for a demo.

What Is an Inclusion Native?

In October, we hosted our second conference dedicated to moving housing resources into the hands of individuals with disabilities and their families. Micaela Connery, founder and CEO of The Kelsey, was the conference’s keynote speaker.

 As a Harvard fellow, Micaela researched how to create communities and housing that included people of all abilities, and the answers led her to create The Kelsey.

In memory of her cousin, Micaela’s work is coming to fruition. The Kelsey is currently building four mixed-income, mixed-ability housing developments through public-private partnerships. She believes what she calls “inclusion natives” want to live in fully inclusive developments. From The Kelsey’s website, the following blog explains what that means and why she believes inclusive natives are ready for change.

“At The Kelsey, we talk a lot about inclusive communities and the type of people who would want to live in them. We often use the term “Inclusion Natives” to describe people with and without disabilities who grew up in inclusive settings. As adults today, these are the kinds of individuals who’d be drawn to mixed ability, mixed income housing. These Inclusion Natives expect inclusion — and they’ll even pay for it — but the real estate market has yet to deliver the inclusive housing stock they desire. We want to take a moment to explain what we mean when we talk about Inclusion Natives and why they are so important to our work.

Illustrated people holding hands in a circle, demonstrating inclusion.
Illustration from Youth Intervention Programs Association

Let’s start with a history lesson.

 

In 1975, Congress enacted the Education for All Handicapped Children, a law that made the right to an education a reality for students with disabilities. Prior to this law, 4 million children with disabilities were excluded from public schools. Of the children that did go to school, many did not receive an education appropriate to their needs. Individuals with disabilities were sent to separate institutions and schools, even if they did not need to be in those settings.

Then, in 1990, Congress updated the title and language of the law and renamed it the Individuals with Disabilities Education Act. The reauthorization entitled all students to a free and appropriate public education in the least restrictive environment, and subsequently, the number of students with disabilities in the classroom alongside students without disabilities soared to unprecedented numbers.

Since IDEA, kids in the United States have grown up with inclusive education as the norm. For these kids, there is no “special’ classroom or separate bus. Since 1 in 7 kids in the United States has a developmental disability, they likely have a friend with autism, Down Syndrome, or other developmental disabilities. They teach peers and adults why using the R-Word is offensive. They value disability as an important identity that adds to the diversity and richness of their community. Kids with and without disabilities learn together, play together, and grow together.

In our focus groups at The Kelsey, we see the desire for inclusion over and over again. In fact, inclusion appears to be the default expectation. One young man noted: “It’s as though my classmates with disabilities disappeared after high school.” He had friends and classmates with intellectual and developmental disabilities in high school, but in college and professional life, those individuals and relationships virtually evaporated.

Speaking of Inclusion Natives, one mother of a child with autism explained: “It’s more important that my son lives with people who want to live with people with autism than it is for him to live with other people with autism.” Advocates with disabilities are also demanding inclusion — that their housing options not be segregated or specialized, but within communities with people with all abilities and with access to the supports and services they need.

Kids that started kindergarten in 1990 with the passage of IDEA are in their early 30’s today. These Inclusion Natives, of all abilities, are now young professionals moving to new cities, graduate students looking for housing, and renters looking for apartments with the best amenities. Their early understanding of inclusion, genuine appreciation of diversity, and subsequent desire to spend money on products that also promote a broader social mission means this generation is perfectly positioned for The Kelsey’s mixed ability housing model. We want to deliver the inclusive community that meets their demands.”

Celebrating World Social Justice Day

February 20th is World Social Justice Day: a day to honor the work of thousands of individuals fighting for a world that is more equitable and just for all its citizens. As a practice, social justice work tries to right past wrongs that harm marginalized communities.

Image with blue background, white text stating "World Day of Social Justice"

People with disabilities have historically been spoken for – not consulted with. Many times, the disability community has been an afterthought to historic legislation, like the Affordable Care Act. People with disabilities and social justice work ought to go hand-in-hand, but what would that look like?

What is Social Justice?

Some people believe that social justice work is unnecessary and takes away from what they already have. That’s a common misconception.

Social justice is actually the effort to create fair and just interactions between disadvantaged people and society. Efforts to create a just society can be measured by the levels of inequality in wealth, housing, employment, and many other issues. For example, does a policy consider who directly benefits? Does a law reflect who needs more support and resources? If not, that legislation may not apply a social justice lens to that issue.

How Can Social Justice Work Benefit People With Disabilities?

Simply put, efforts to include social justice ideas can make life more accessible for individuals with disabilities. By removing barriers to access, people with disabilities live full, independent lives where they follow their dreams.

Student playing with puzzle pieces in colorful classroom settingFor example, the Individuals with Disabilities Education Act (IDEA) was passed in 1990. This act mandates that children with disabilities deserve access to the same educational opportunities their peers receive. By creating inclusive classrooms, IDEA helps remove barriers to success as adults. More students with disabilities are enrolling in the growing number of post-secondary education programs available across the country.

Passing IDEA meant that more opportunities became available to a group of people who were historically excluded. With more opportunities, doors to achievement open. The act led to a higher chance for individuals with disabilities to receive excellent jobs or live independently. And that’s just one example.

How Can You Help?

If you are a person without a disability wondering, “How can I help?” we have answers. Commit to socially just and innovative solutions. Listen to people with disabilities when they tell you what they need. Confront ableism when you see it. Use your power to boost the voices of people with disabilities.

Inclusion is everybody’s responsibility, especially on World Social Justice Day. Learn more about our inclusion efforts through the Change Champions program and discover tools to facilitate inclusion.

Exploring Identities with Disabilities

February is Black History Month, a time to reflect on injustices toward, and successes of, Black Americans throughout our country’s history. During this month, we will see many tributes to incredible people like Dr. Martin Luther King Jr., President Obama, and Frederick Douglass. These are all men who have done extraordinary things, but it is important that we include all types of people in reflections during Black History Month, specifically black individuals with disabilities.

Discussing History Through Intersectionality

Example of intersectionality in a chart.Every person has a complex identity that is made up of many parts, which can sometimes come into conflict. Those way those parts of your identity work together are known as intersectionality. Your identity is made up of your history, heritage, race, gender, sexuality, socioeconomic status, and more. That is a lot of pieces to fit together!

One aspect of identity that isn’t always considered is ability. Disability exists in every group of people, and it should be taken into consideration in every community. Movements that don’t include people with disability cannot be a fully just movement. That’s why we are highlighting members of the black community who have lived with disabilities.

Exploring Disability in the Black Community

Fannie Lou Hamer with a microphone speaking to a crowd.Fannie Lou Hamer was born in Mississippi at the beginning of the twentieth century. She was born into a family of sharecroppers, and she picked cotton for the first part of her life. Over the course of her life, she became a leader of the Civil Rights Movement, a powerful speaker who engaged crowds much like Dr. Martin Luther King Jr. did.

Also like Dr. King, Hamer was arrested during a protest. After her arrest, she walked with a limp and had a permanent blood clot behind her eye. Her disabilities didn’t stop her. She continued to fight for civil rights, and eventually included human rights in her fight after being sterilized without her knowledge.

Vilissa Thompson in a white and black dress with her wheelchair.The obstacles that come along with being both black and having a disability have not ended since Hamer’s death in 1977. Today, a leader for the black disability community is Vilissa Thompson, creator of the Ramp Your Voice movement. Thompson has osteogenesis imperfecta, a developmental disability that is known as brittle bone disease.

Thompson is a social worker and an expert in educating the public about disability issues. Through her work, she has been able to highlight issues that directly affect people with disabilities, educating the public through a large online following and public appearances. Thompson always brings with her an intersectional lens to her events, including her identities as both a person with a disability and a black woman.

Intersectional Issues and Policy

Many areas of disability policy revolve around the rights of individuals with disabilities, like housing, education, and employment. It is clear that disability rights are civil rights, and it’s important not to forget people along the way.

Disability policy is often siloed into “disability issues.” But no one is only disabled. People with disabilities are varied and come in every type and color. Instead of segregating issues, policies affecting people with disabilities must be an intersectional fight, inclusive of many different identities at once.

California Dreamin’ with Cynthia & Chrissy

As temperatures dropped last month, two members of our staff escaped to California to work with our partners at Club 21 Learning and Resource Center, VTC Enterprises, and New Horizons. Community Life Coordinator Cynthia visited to conduct life skills software training through our My Full Life tool. A couple of weeks later, Chrissy visited to present at their Tools For the Journey conference.

Life Skills Software Training

New Skills Inventory client practices her kitchen skills.For the past twelve years, Cynthia Witherspoon has been working with the Full Life Model, developing tools and resources. She is an expert in our online application for life skills development, My Full Life, and shares these resources with our partners across the country. She visited Club 21 and VTC Enterprises to help them work with our My Full Life Skills Inventory over the course of six days.

During her time in California, Cynthia met with several young adults with disabilities who will be using our Skills Inventory. On one day, Cynthia joined a young woman named Lily at a coffee shop. She then observed her grocery shopping and cooking delicious tacos.

Throughout her trip, Cynthia says, “Parents of individuals completing a Skills Inventory had ‘ah ha’ moments.” The parents plan to encourage their children in pursuing more opportunities to practice independent living skills. Next, we will continue supporting the brand new Skills Inventory Consultants Cynthia helped train, completing written reports for the families.

Presenting Tools For the Journey

My Full Life Director Chrissy Dale also escaped to California during Chicagoland’s intense cold. Chrissy presented at the Tools For the Journey conference, hosted by Club 21. Using our Skills Inventory as a Road Map to Independence, Chrissy demonstrated how families can support the growth and development of their child.

Club 21 Executive Director Nancy Litteken strives to provide role models of adults living full lives with disabilities. By showing families examples of what is truly possible, those families can begin to dream bigger. According to Chrissy, community member Danny was “the perfect example of how families can dream bigger for their child.”

After the conference, Chrissy shared, “What excites me the most is Club 21 students transitioning into adulthood while working with our most recent agency collaboration, New Horizons, aligning our missions by taking a person-centered approach.”

Moving Forward and Igniting Dreams

Want to learn more about what Cynthia and Chrissy were up to? Check out more information about My Full Life to learn about the Skills Inventory! You can also connect with Chrissy online or schedule time to talk about how My Full Life can help you.

How to Teach Self-Advocacy Skills to Students with Disabilities

Young student working hard. Learning self-advocacy means developing a set of skills that are based on self-knowledge, communicating your understanding, and knowing your rights. When educators teach self-advocacy skills to students with disabilities, that knowledge opens doors to success that might otherwise never have appeared.

Unfortunately, students with disabilities historically have not been included in learning intangible skills such as the development of leadership abilities. To develop a skill set of self-advocacy tools, dive into cognitive functions like goal setting, intrapersonal functions such as building confidence, and interpersonal functions like collaborating on teams. Teachers seeking to support all their students, including those with disabilities, can read more from the National Council on Learning Disabilities to understand how to implement self-advocacy skill curriculum to your classes.

Develop Self-Awareness Through Skills Assessment

Educators can teach self-advocacy skills to students in a variety of ways. This image shows an individual in a wheelchair with two others on a grassy lawn.Begin by understanding the students’ strengths and weaknesses. Teachers can conduct a skills assessment, and then they should try to focus on the strengths. Starting with strengths helps students refrain from internalizing low expectations. With a solid understanding of their talents, students will leave class with greater self-awareness.

Making Skill Development A Priority

The next step sounds simple: make teaching self-advocacy skills a critical priority. But this step is like the foundation of a house. It will require a deep dive into lesson plans, adding opportunities for students to express their needs and desires. Without baking these ideas into the classroom’s curriculum, students most likely will not succeed in advocating for themselves.

Het is gecontra-indiceerd voor kinderen om geneesmiddelen op basis van sildenafil te nemen, aangezien deze niet over bedoeld zijn voor gebruik bij kinderen. Dit geldt zowel voor jonge kinderen als voor adolescenten. Als een tiener wordt geconfronteerd met het probleem van erectiestoornissen, moet hij hulp zoeken bij een uroloog en niet gaan experimenteren met Viagrapillen.

Flexible Classrooms Teach Self-Advocacy Skills

A teacher in front of their classroom, photographed from the students' perspective.Teachers who want to support students in upholding their rights should try to create learning activities that engage all of their students on this topic. Some schools are beginning to move toward Universal Design for Learning, or UDL. UDL allows teachers to accommodate individual learning preferences, while also guiding the development of flexible classrooms.

Finding Real Opportunities to Learn

Finally, schools that support this skill development should consider ways to make learning this skill tangible. Because self-advocacy is not easily measured, learning experiences that are collaborative and engaging will help gauge students’ capacities. Schools could begin making connections with local businesses to see what opportunities students could have in the community. Through learning collaborations in the community, students gain real-world experience, and most will transition out of school ready to succeed.

How We Can Help Educators & Agencies

Teaching current students how to advocate for themselves is obviously crucial to their post-school success. But what about adults with disabilities who weren’t taught self-advocacy skills in school? My Full Life™ can help. An online learning management system, My Full Life consists of three parts: a skills assessment, planning process, and skills curriculum.

Agencies that serve adults with disabilities can request a free demo of My Full Life today! This offer is also available to educators teaching transition skills to students with disabilities. Reach out today to learn more!

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